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Lindsay Murray
United States
Приєднався 12 бер 2012
Hey! Welcome to my channel! My name is Lindsay & I am a bi, disabled, girly girl that loves adaptive fashion, animals, & crystals. This channel is my creative outlet to raise awareness for invisible disabilities & life with chronic illness & a service dog. I am passionate about sharing my story with the goal of helping others feel less alone, while educating & raising awareness for my conditions. I always try to highlight the good moments of my life while also being honest & open about the hard realities of it as well. Join me & my service dog Simon (& cat Luna) on our journey together with friends & family!
To see more content from me, subscribe to join the famurray & follow me on other social platforms to keep up with my day to day life. Sending all my love and spoons! xoxo
Business Inquires: Email me at chronicallylindsaym@gmail.com
To see more content from me, subscribe to join the famurray & follow me on other social platforms to keep up with my day to day life. Sending all my love and spoons! xoxo
Business Inquires: Email me at chronicallylindsaym@gmail.com
pack w me for my birthday trip w chronic illness, medical devices, & a service dog
Pack with me for my birthday trip (to Rhode Island) as someone with #chronicillness a central line, gj tube, and a service dog. Hangout and pack along with me as I prepare for my biggest trip in a long time and bring you along with me! I hope you all enjoy this video. Sending all the love and spoons! #disabilityawareness #packwithme
SUBSCRIBE to join the Famurray & follow me on other platforms to see more content from me! Don't forget to give this video a thumbs up if you liked it! Comment below any video requests!
Follow me on social networks so we can be friends!
♡ TikTok:
www.tiktok.com/@chronically.lindsay
♡ Instagram:
chronically.lindsay
♡ Snapchat: Follow me on here for day to day updates!
www.snapchat.com/add/disabledandhot
♡ Pinterest:
www.pinterest.com/chronicallylindsay/
Disclaimer: This video is not sponsored. All opinions and actions are my own. Some links and discount codes are affiliate links. This video is for educational purposes to raise awareness for chronic illness/epilepsy/pots/gastroparesis/ehlers danlos/central line/g-j tube/service dog life. Please consult with a doctor, nurse, or professional for any medical advice.
Rare Patient Voice: Sign Up (make $$)
www.rarepatientvoice.com/rp/LindsayMurray
My favorite canes!:
fashionablecanes.com/lindsay
Use my discount code- "lindsay"
Shop SlickChicks! @slickchicksonline
Link- slickchicksonline.com/?ref=LINDSAYMURRAY
Use my Discount Code- "LINDSAY20"
Shop PureSpectrum! (my fav oils!)
Link- tr.ee/7MopJz1hWY
Use my discount code- "LINDSAY15" for 15% off
Shop @careandwear at careandwear.com
Use my discount code "LINDSAY25" for 25% off your purchase!
Shop BinasButtonsnmore:
Use code "LINDSAY10" for 10% off your order!
binasbuttonsnmore
www.etsy.com/shop/BinasButtonsnMore
Business Inquires: Email me at chronicallylindsaym@gmail.com with Business Inquiry in the subject line.
Music: Provided by UA-cam and iMovie Library
FAQ:
How old am I: 25
Where did I go to college: Towson University Alumni 2021
What I used to film- Nikon D5500 / Vlog- Sony a5000 / iPhone 13
What I used to edit- iMovie
Voiceovers- Ice Blue Snowball Microphone
SUBSCRIBE to join the Famurray & follow me on other platforms to see more content from me! Don't forget to give this video a thumbs up if you liked it! Comment below any video requests!
Follow me on social networks so we can be friends!
♡ TikTok:
www.tiktok.com/@chronically.lindsay
♡ Instagram:
chronically.lindsay
♡ Snapchat: Follow me on here for day to day updates!
www.snapchat.com/add/disabledandhot
♡ Pinterest:
www.pinterest.com/chronicallylindsay/
Disclaimer: This video is not sponsored. All opinions and actions are my own. Some links and discount codes are affiliate links. This video is for educational purposes to raise awareness for chronic illness/epilepsy/pots/gastroparesis/ehlers danlos/central line/g-j tube/service dog life. Please consult with a doctor, nurse, or professional for any medical advice.
Rare Patient Voice: Sign Up (make $$)
www.rarepatientvoice.com/rp/LindsayMurray
My favorite canes!:
fashionablecanes.com/lindsay
Use my discount code- "lindsay"
Shop SlickChicks! @slickchicksonline
Link- slickchicksonline.com/?ref=LINDSAYMURRAY
Use my Discount Code- "LINDSAY20"
Shop PureSpectrum! (my fav oils!)
Link- tr.ee/7MopJz1hWY
Use my discount code- "LINDSAY15" for 15% off
Shop @careandwear at careandwear.com
Use my discount code "LINDSAY25" for 25% off your purchase!
Shop BinasButtonsnmore:
Use code "LINDSAY10" for 10% off your order!
binasbuttonsnmore
www.etsy.com/shop/BinasButtonsnMore
Business Inquires: Email me at chronicallylindsaym@gmail.com with Business Inquiry in the subject line.
Music: Provided by UA-cam and iMovie Library
FAQ:
How old am I: 25
Where did I go to college: Towson University Alumni 2021
What I used to film- Nikon D5500 / Vlog- Sony a5000 / iPhone 13
What I used to edit- iMovie
Voiceovers- Ice Blue Snowball Microphone
Переглядів: 853
Відео
make DIY finger ring splints w me! (for my hEDS)
Переглядів 732Місяць тому
make DIY finger ring splints w me! (for my hEDS)
come shopping w me! mini #chronicillness vlog w my #servicedog & fiancé
Переглядів 7212 місяці тому
come shopping w me! mini #chronicillness vlog w my #servicedog & fiancé
come get a tattoo w me & service dog! chronic illness tattoo tips!
Переглядів 1,2 тис.2 місяці тому
come get a tattoo w me & service dog! chronic illness tattoo tips!
a #seizure I had the other day, how my #servicedog helps #disabilityawareness #wlw
Переглядів 4,7 тис.2 місяці тому
a #seizure I had the other day, how my #servicedog helps #disabilityawareness #wlw
I got a wheelchair for my POTS & hEDS! Unboxing, assembly, & demo (VOCIC v53 power chair)
Переглядів 1,8 тис.2 місяці тому
I got a wheelchair for my POTS & hEDS! Unboxing, assembly, & demo (VOCIC v53 power chair)
mini day in my life w #chronicillness river & crystal store vlog #disabilityawareness #servicedog
Переглядів 6052 місяці тому
mini day in my life w #chronicillness river & crystal store vlog #disabilityawareness #servicedog
72 hour ambulatory EEG vlog; experience, tips, & advice
Переглядів 1,7 тис.3 місяці тому
72 hour ambulatory EEG vlog; experience, tips, & advice
chronic illness tune up vlog gone wrong, seizure sent me to ICU, new central line & gj tube!
Переглядів 3,2 тис.4 місяці тому
chronic illness tune up vlog gone wrong, seizure sent me to ICU, new central line & gj tube!
cutting and dyeing our hair at home; Valentines day date #chronicillness #wlw friendly!
Переглядів 2,1 тис.5 місяців тому
cutting and dyeing our hair at home; Valentines day date #chronicillness #wlw friendly!
realistic week in my life w chronic illness 2024; dr appts, seizures, dressing change, & more!
Переглядів 3,2 тис.5 місяців тому
realistic week in my life w chronic illness 2024; dr appts, seizures, dressing change, & more!
#chronicillness pickup lines for Valentine’s Day! #spoonie #pickuplines
Переглядів 5506 місяців тому
#chronicillness pickup lines for Valentine’s Day! #spoonie #pickuplines
realistic day in my life w chronic illness; flare up vlog w pain, seizures, + more
Переглядів 5 тис.6 місяців тому
realistic day in my life w chronic illness; flare up vlog w pain, seizures, more
New Years Eve #Spoonie Live Chat #chronicillness
Переглядів 1 тис.7 місяців тому
New Years Eve #Spoonie Live Chat #chronicillness
what i got for Christmas 2023; as a girly w chronic illness
Переглядів 1 тис.7 місяців тому
what i got for Christmas 2023; as a girly w chronic illness
how to handle the holidays w chronic illness & disabilities; spoonie advice
Переглядів 7327 місяців тому
how to handle the holidays w chronic illness & disabilities; spoonie advice
decorating for Christmas w chronic illness! Date night in
Переглядів 1 тис.8 місяців тому
decorating for Christmas w chronic illness! Date night in
a bunch of chronic illness gift ideas; spoonie gift guide!
Переглядів 9888 місяців тому
a bunch of chronic illness gift ideas; spoonie gift guide!
glow up w me after a ICU hospital stay; spoonie friendly at-home transformation
Переглядів 1,9 тис.8 місяців тому
glow up w me after a ICU hospital stay; spoonie friendly at-home transformation
I was intubated & medflighted; status epilepticus ICU hospital vlog pt 2
Переглядів 8 тис.8 місяців тому
I was intubated & medflighted; status epilepticus ICU hospital vlog pt 2
beach trip vlog w chronic illness & my service dog; pt 1
Переглядів 2,7 тис.9 місяців тому
beach trip vlog w chronic illness & my service dog; pt 1
chit chat GRWM: chronic illness life update, I went into status epilepticus
Переглядів 1,6 тис.9 місяців тому
chit chat GRWM: chronic illness life update, I went into status epilepticus
spooky date night vlog w chronic illness; painting pumpkins (lgbtq+)
Переглядів 1,5 тис.10 місяців тому
spooky date night vlog w chronic illness; painting pumpkins (lgbtq )
ER hospital vlog w chronic illness: g tube change & i got covid..
Переглядів 4,7 тис.10 місяців тому
ER hospital vlog w chronic illness: g tube change & i got covid..
Halara try on haul & styling princess athleisure outfits! w syncope + absence seizures
Переглядів 1,3 тис.11 місяців тому
Halara try on haul & styling princess athleisure outfits! w syncope absence seizures
genetic appt chronic illness vlog: formal Ehlers Danlos diagnosis & i had 2 seizures
Переглядів 2,3 тис.11 місяців тому
genetic appt chronic illness vlog: formal Ehlers Danlos diagnosis & i had 2 seizures
Temu Haul! Unboxing & Review, is it worth it?
Переглядів 3,5 тис.Рік тому
Temu Haul! Unboxing & Review, is it worth it?
a few days in my life w chronic illness & a sd; tattoos iron infusion dr appt + Giveaway!
Переглядів 1,6 тис.Рік тому
a few days in my life w chronic illness & a sd; tattoos iron infusion dr appt Giveaway!
morning routine w chronic illness & a service dog
Переглядів 1,8 тис.Рік тому
morning routine w chronic illness & a service dog
opening up; struggling with depression and chronic illness
Переглядів 1,7 тис.Рік тому
opening up; struggling with depression and chronic illness
Trust me last hospital visit i went they blew 7 of my veins , i wish i knew about a picc line.
Zofran is my friend. My doctor also recommended Pepcid for reflux. I thought he was crazy-how can reflux make me vomit?? But turns out he was right. I have cyclic vomiting syndrome.
I’m so used to it at this point I rarely try to stop people anymore. I’ve straight up had medical professionals move my Rollator to the other side of the room to make space without even letting me know first
I just want to hug you you are so sweet I ♡ u
I have pots, I’m autistic as well so the feeling of it makes extremely anxious and the fear of passing out does too, I would love a service dog like Simon but I don’t need one I’m so happy you have him :) sending lots of love and spoons
Its the little things in life that make it worth it. Like my best friend taking my bag from my wheelchair when i said i was struggling to push and telling me "no wonder, this is really heavy for you, it should be easier now", giving me running starts so i can go flying down a sidewalk even with her bad knees because she knows it makes me laugh and takes the pressure off of my weak arms and bad shoulders, and pushing me/helping me walk when i cant anymore. Sitting with me when i have seizures, letting me cry when it all becomes too much. My parents reminding me before a trip to tell the people at parking that i have a placard and that I need closer parking, telling me that theyll always be proud of me and love me no matter what on the days i feel disgusting for being their sick disabled kid (im always worried about 'dissapointing' them by being sick), being proud of my service dog when she does something new, being angry when my doctors dismiss me and mistreat me. When you get a text reminding you not to overdo it, when youve slept all day and someone says "you really must be tired, you can go back to sleep, its okay." The world is so cruel but when the people you love do little things like that it makes you feel like you are still important and belong despite it all.
I’m so sorry love that you have to go through this, chronic illness truly takes everything we have sometimes, I’m recovering from a bad flare rn so I relate. Sending love and spoons 🥄 ❤️❤️
I have a puppy and I am Training it to be a diabetes service dog but how do you give it access to be a service dog?
Hey Lindsay!! I have a quick suggestion. When wiping down, i reccomend using purrel wipes. They are a bit more expensive, but thats what they use in hopsitals. My dad actually works there, and they do different experiments which brand works the best to kill germs. Im not just saying that cause my dad works there lol. Purrel is the mainstream sanitizing company in healthcare. Hope that helps, i know keeping everything clean is essential for autoimmune issues ❤
Im 21 and also diagnosed with SMA syndrome, i lost weight which is a very bad thing for me, but my dr didn’t recommend the surgery he said u need a diet to gain weight but i its really hard thing to do
So sorry for you. How often do these happen? Hope its not daily.
@@grahamquick4212 unfortunately these are now happening daily right now (especially during my cycle/any flare ups) 😔🩵 ily
Is that indefinite or will you go for a while not experiencing this? Can your partner do anything for you during these? Sorry if these are too personal questions, I am really hopeful for you.
I got diagnosed last year, and I don’t faint anymore. A lot of Gatorade and swimming later, all I have is a bit of lightheadedness 🤠
Thank you so much for this video! It honestly made me cry because it was like seeing myself going through a flare day. I hate that you have to go through all that but I’m glad you’re advocating for people with disabilities. I felt like I was alone dealing with doctors who think you’re full of bs and having to adjust your lifestyle to your body. All that to say thank you!
I’m 39 and recently was diagnosed with SMA syndrome in June of 2024. I had been suffering in silence for 2 months prior. Started losing weight, having major stomach pains,feeling nauseous all the time, getting full after eating barely any food. So I’m a Navy veteran so I request to see a nutritionist and I requested to get a CT scan cause I knew something was wrong. I had surgery July 3rd was in the hospital for over a week. Surgery went well and I’m gaining weight back and my appetite is back where it needs to be. I have a feeding tube as well to help with my nutrition but things are getting better each day. It’s nice to know I’m not alone. I’m about 4 weeks post surgery and I still have some ways to go when it comes to gaining weight back but that surgery definitely helped. I hope anyone who reads this doesn’t feel so alone and do what’s best for you.
So if you don’t mind me asking, what effect does the seizure medication have on you? Since you showed you still have partial seizures
I hope you see this because I am a conically ill because of one of my diagnosis and I still love to do every thing that normal person does im 18 years old and on words along with different diagnosis I’m still living life i have lots of different Medical diagnosis that keeps on appearing as I get older so I have too take 3 medicine prescribe to me lots of vitamins for different reasons that i have been in the hospital for many different reasons and some i have to stay in the hospital to heal from sugars and they hade me taking bad tasting medicine in the hospital and outside of the hospital for after sugars medicine doesn't taste good at home and hospital visits to get things done
OMG MINIONS LOL
This means a lot to me. I have no friends because I am always so scared of failing them bc I cant predict my symptoms. So I just stopped having friends altogether 🤷♂️
Thing is, its so multifaceted! I think part of it is that people with chronic conditions have highly sensitive, reactive, inflammatory bodily responses. EVERY environmental change requires the human body to respond in order to regulate. Warm up cold skin, skin tanning instead of burning... All these processes (ie regulating temperature, processing UV rays) involve the body identifying "problems" to "fix." A body that is sensitive, reactive, and inflammatory is more likely to process [and respond to] a "problem" as a "!!PROBLEM!!." And then a "fix" is more costly for an already taxed system which doubles down on that! 100% everything you said... and all of it down to a fine, cellular level. Being a spoonie isnt just a list of symptoms specific to a condition... it affects everything. Sometimes i could say all of my cells' responses are sort of like poking a bruise! Hope I'm making sense. You make awesome content :-)
maryland!!
this is a really beautiful video 🫶 i hope you had a lovely time!!
I have seizures too (epilepsy) and I have to cover my eyes when movies have flashing scenes and i always miss parts I want to see 😂 do you have to do that too?
Better to feed them wet food and let him not have the west indoors all the time. Your gf seem to be a wonderful support.
I got fully diagnose with pots recently and it sucks all the stuff you said about pots I get as well
That cane is so damn cute🥹
Omg I bet that's painful love
That’s me after every syncope and adrenaline dump ❤️🩹
What do you usually do after seizures?
@@Cute.Onions123 usually I’m so exhausted I just nap/sleep lay down for a while I’m also pretty foggy/confused after sometimes I’ll put a show/video on to listen to, take meds to help w post seizure symptoms/flares/pain etc 🫶
That is 100% accurate! Thank you for spreading awareness :) I have a question if you don’t mind. Do you now have a portable oxygen tank? I am so sorry you have to go through this… sending spoons :) Have a great day :) 💙🩵🥄🦓🥄🩵💙
@@Sonia.manitius0305 💖 thank you for your kindness and continued support 🥄🫶 I do have a oxygen tank rn for my bad seizures bc I will often desat during seizures and have been at night as well (I’m supposed to be getting a sleep study soon) sending you all the love & spoons! 🥄🩵
@@ChronicallyLindsay Thank you :) That makes total sense! I hope you get some more answers soon :) 🩵💙🩵
there is one, they’re in danger and i can’t tell yet
This is so cute and for some reason I almost teared up
Are you usually tired after? It looks pretty painful. I couldn't imagine the dystonia episodes after that, and I thought dystonia was painful, and it is
@@caseyslifewithcp3727 1000%, so so tired after episodes like this & lots of pain w the dystonia after 🩵 my day is normally spent after seizures like this especially when we have to use my emergency nasal spray, sending you all my love and spoons pain suckz 🫶
I have cerebral palsy and other disabilities including dystonia and sometimes after an episode of dystonia I can't move the next day because it hurts so bad
I know its old lol but does it also cause heartburn alot ?
Ideal summer outing! That 🥨 made my little POTSIE heart happy 😂
@@Dermatillomaniac omg yes the salt was SOOOO needed 🤣🩵🥨
Drive-in movies were fun. Glad you got to go. As you said going with chronic illnesses n you have a partial seizure. Have you ever had a seizure free day?❤
Me fr
I used to go during the summer as a kid! Fun times ! Now they’re all closed cause it’s not as popular anymore, it’s sad
How fun!! I remember going to the drive in as a kid and we loved it! Mom would pack hot dogs and candy, we’d bring our fav stuffed animal and cozy up to watch the movie. Of course we’d fall asleep every time though 😂
Not trying to get to personal but I’m wondering if you are around Maryland? I have a Bengies drive in here in Maryland
@@fireangel02 no worries I appreciate your kindness! Yeah I do live in Maryland :)
@@ChronicallyLindsay that’s cool I live in Baltimore county. I’ve been wanting to go to bengies again soon. I haven’t been in. A while
aww this seems like such a fun idea to do with friends :)
@@user-kc8db8lz9h was so much fun!! Highly recommend 👏😍💖
I got pots last year after Covid, and I’m almost 50! I hoped it was just menopause 😂! I have a bunch of dysautonomia stuff already ( gastroparisis, bladder dysfunction, pain) , and my doctor laughed so hard with this pots one, because as he says, it’s usually a young girl’s problem 😩. Keep moving and keep laughing! 😂
Hey I just wanted to let you know I really proud of you for posing a s seizure on UA-cam I’m I had to skip it just because I’m really in a trigger day but I just wanted to let you know it probably helped a lot of people
Trying to explain this to my family. It's hard.
I know what growing pains feel like and I would always get them in my calves but in the fourth grade I got terrible knee pain and I was painful walking standing or even sitting with bent legs. After SIX MONTHES of complaining I was taken to a doctor and he said it was growing pains. I continued to have this pain for a year and a half constantly day, night, every second of every day. I’m now 14 and a year ago was diagnosed with hashimotos and they said,” oh it’s just joint pain, once you get used to the medication it should stop” The joint pain never stops, it in my knees, lower back, hips, anckles, and my wrists and elbows when I have a really bad flare up. I’m now going to a rheumatologist to see if I have juvenile rheumatoid arthritis because my pain should have stopped when I started taking my medication and it never did
I want to thank you so much, you have no idea how much you make my day better. Back in October of 2023 I was diagnosed with hashimotos, then in January I was diagnosed with 2nd degree AV block in my heart. I’ve had medication readjusted about 5 times since my hashimotos diagnosis and I constantly feel dizzy and like I’m going to gain as well as joint pain on the daily and headaches that last forever. Earlier this month my doctor referred my to a rheumatologist to see if I have JIA. My appointment is in the next few weeks and I keep feeling as if more medical problems keep getting thrown on me but you have always been there whenever I have a flare up or I’m in a lot of pain so thank you for being there. You are making a difference in the world. Love you lots and hope you have a good day today 🫂
I hope you have a great birthday!! 🥳🎂✨🫂🫂🫂🫂🫂🫂
Crying rn, thank you for the reminder ❤❤❤
Your cane is so cute!
Hope you have fun, im going on vacation myself with my mom and niece in a few weeks for my birthday too my bday is aug 23rd I’ll be 24, i just got myself a new suitcase that’s coming in the mail since my old one broke, happy bday btw 🎉
Hi Lindsay how are u feeling? I learned a lot from your packing video. Austin is coming in 3 days I'm getting really excited. Your channel is always been a safe place for me. Send me some spoons for my upper endoscopy. I'm really nervous about it❤❤❤❤